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Trisomy 18 Info UK
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Showing posts with label
Healthcare professionals
.
Show all posts
Showing posts with label
Healthcare professionals
.
Show all posts
12 July 2017
The myth of the irrational parent
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Will parents really do anything to save their child? This article by Zoe Williams in the Guardian today is just another in a lo...
1 comment
27 June 2016
VIDEO: Neonatal ethics conference presentation
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In June 2016, we were invited to take part in a neonatal ethics conference. We talked about Rumer and about some of the difficulties we ...
10 June 2016
On winning
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Even if you do 'win', there are a lot of losses I wrote this for another website. As far as I know, they haven't yet put ...
2 comments
30 May 2016
The responsibilities of parents
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Quite often when we asked for things like access to Rumer's notes, or to be involved in medical decisions, we were told, in order to...
9 May 2016
To a hospital somewhere in the UK
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I wrote this letter when Rumer was 10 weeks old and in PICU, after an online friend shared her letter from a major UK hospital denying t...
4 comments
3 May 2016
What do you call your doctors? Jane or Dr Smith?
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This article from the BMJ was retweeted by a couple of our neonatal consultants: Is it Jane or Dr Smith? While I admit to having limit...
24 April 2016
How did it feel to be the parent of a baby with trisomy 18 on the neonatal unit?
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I've been searching for an analogy for this for a while, you know the type: imagine you're abseiling off a tower and half of the...
6 April 2016
The conspiracy theorists on the internet
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Hey, have you heard the one about the father who resuscitated his own baby daughter at birth when the physicians who'd promised to d...
1 comment
30 March 2016
'Slow code': Trisomy 18 in the UK
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The US folk call it 'slow code'; we don't have a phrase for it in the UK, but we probably should. I might suggest that '...
19 March 2016
When physicians say "No"
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Your next steps This post is for parents who find themselves in the situation of being told that treatment will not be offered to their...
7 March 2016
The "professionals' meeting"
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Creating a consistent message or colluding against parents? This had a slightly less provocative title when I first wrote it. I was go...
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