Rumer's Rainbow

Pregnancy 2 PREGNANCY 2: Failure to consider all care management options In summary We would like Concerns about the care of Rumer Gomez Pre...

Pregnancy 1 & Appendices 3 6 PREGNANCY 1: Delays in care-planning In summary We would like APPENDIX 3: [George Donnachie] email Request ...

Neonatal & Palliative Care meeting: II Thursday 2nd July 2015 27 weeks pregnant Keen to bring the discussion back to treatment...

Neonatal & Palliative Care meeting: I Thursday 2nd July 2015 27 weeks pregnant So we got back to the now very busy Fetal Medic...

Palliative care is not more important! Wednesday 1st to Thursday 2nd July 2015 26 to 27 weeks pregnant So on Wednesday, we were at...

Stereotypes and Realities Fundamentally, when you have a baby with T18, you are told you have two options to choose from* (of course, y...

I wrote this letter when Rumer was 10 weeks old and in PICU, after an online friend shared her letter from a major UK hospital denying t...

When palliative care goes wrong I admit that I don't think 'palliative care only' should be the routine way of managing all...

Kosho T & Carey J (2016) For our third Research Friday post, we thought we'd look at a recent paper that addresses a question ...

It's okay to choose palliative care. There, I've said it. It is okay to choose not to pursue full interventions for your child w...

Choosing an approach in trisomy 18 When your baby is first diagnosed with trisomy 18, you may well ask, "What can be done?" A...