Rumer's Rainbow

Will parents really do anything to save their child? This article by Zoe Williams in the Guardian today is just another in a lo...

Neonatal & Palliative Care meeting: II Thursday 2nd July 2015 27 weeks pregnant Keen to bring the discussion back to treatment...

Neonatal & Palliative Care meeting: I Thursday 2nd July 2015 27 weeks pregnant So we got back to the now very busy Fetal Medic...

In June 2016, we were invited to take part in a neonatal ethics conference. We talked about Rumer and about some of the difficulties we ...

Quite often when we asked for things like access to Rumer's notes, or to be involved in medical decisions, we were told, in order to...

Stereotypes and Realities Fundamentally, when you have a baby with T18, you are told you have two options to choose from* (of course, y...

A guide for consultant neonatologists Dear Consultant Neonatologist, Welcome to our blog! Every day we keep hearing more stories of p...

Withdrawal of treatment from disabled newborn infants Wilkinson D (2011) Welcome to our second 'Research Friday' post, where ...

The US folk call it 'slow code'; we don't have a phrase for it in the UK, but we probably should. I might suggest that '...

It's okay to choose palliative care. There, I've said it. It is okay to choose not to pursue full interventions for your child w...

Your next steps This post is for parents who find themselves in the situation of being told that treatment will not be offered to their...

Choosing an approach in trisomy 18 When your baby is first diagnosed with trisomy 18, you may well ask, "What can be done?" A...