Rumer's Rainbow

Quite often when we asked for things like access to Rumer's notes, or to be involved in medical decisions, we were told, in order to...

Stereotypes and Realities Fundamentally, when you have a baby with T18, you are told you have two options to choose from* (of course, y...

A lot of people proclaim to hate trisomy 18. I understand why; they feel it took their babies from them. They see it as an enemy that st...

I wrote this letter when Rumer was 10 weeks old and in PICU, after an online friend shared her letter from a major UK hospital denying t...

Trisomy 18. What is it? Most people can grasp pretty quickly that it means that you have three copies of chromosome 18. Most of us hav...

This article from the BMJ was retweeted by a couple of our neonatal consultants: Is it Jane or Dr Smith? While I admit to having limit...

I've been searching for an analogy for this for a while, you know the type: imagine you're abseiling off a tower and half of the...