Complaint about Rumer’s care, part 4

Pregnancy 1 & Appendices 36

• PREGNANCY 1: Delays in care-planning

  • In summary
  • We would like
• APPENDIX 3: [George Donnachie] emailRequest to delay multidisciplinary meeting (03 Jul 2015)
• APPENDIX 4: Our emailProfessionals to see (11 Jun 2015)
• APPENDIX 5: [Ida Leigh] emailInitial neonatal care plan (14 Jul 2015)

  • Term birth
  • Preterm birth
  • Further action planned
• APPENDIX 6: [Khushi Holloway] emailProvisional obstetic/midwifery care plan (29 Jul 2015)

Concerns about the care of Rumer Gomez

Pregnancy 1: Delays in care-planning

Pregnancy

1.Delays in care-planning

This was a common theme throughout the antenatal period, in which we found significant difficulties in accessing some specialisms, notably NeonatologyNeonatologySee Neonatal Unit Who’s Who entry. Additionally, some professionals were keen to delay care-planning discussions until later in the pregnancy, despite this being against our clearly expressed wishes and having a potentially negative impact on Rumer’s care.

Complaint about Rumer’s care, part 3

Preamble & Appendix 2

• Preamble
• APPENDIX 2: Amalgamated list of outcomes we would like

  • B PREGNANCY

    • 1. Delays in care-planning
    • 2. Failure to consider all care management options
    • 3. Access to further opinions
    • 4. Attitude of staff
  • C [CLINICAL ETHICS COMMITTEE]

    • 1. Referral to [CEC] and involvement of patients/parents
    • 2. Handling of Rumer’s cas by the [CEC]
  • D BIRTH

    • 1. Neonatal management at birth
    • 2. Other concerns
  • E NEONATAL UNIT

    • 1. Medical care
    • 2. Nursing
    • 3. Communication & culture
  • F [BLYTON WARD]

    • 1. Infection control
  • G PAEDIATRIC INTENSIVE CARE UNIT (PICU)

    • 1. Medical care
    • 2. Nursing
    • 3. Comminucation & culture
    • 4. Care during Rumer’s final 24 hours
  • H PAEDIATRIC CARDIOLOGY

    • 1. Cardiology issues
  • I PAEDIATRIC PALLIATIVE CARE

    • 1. Palliative Care issues
  • J OVERALL

    • 1. Trisomy 18
    • 2. Working with parents
    • 3. Professionals’ meetings
    • 4. Other issues

A bit of an administrative update, this one: see below for the short introductory part of the complaint, followed by Appendix 2, which is a list of all the outcomes we’re hoping for as a result of the complaint. The latter is compiled from shorter lists throughout the document, and in order for it to make sense, only the outcomes which relate to the parts of the complaint that have been published to date are shown. We will add to the list as further parts of the complaint are published.