16 February 2018

Complaint about Rumer’s care, part 4

Pregnancy 1 & Appendices 36

Concerns about the care of Rumer Gomez

Pregnancy 1: Delays in care-planning

Pregnancy

1.Delays in care-planning

This was a common theme throughout the antenatal period, in which we found significant difficulties in accessing some specialisms, notably NeonatologyNeonatologySee Neonatal Unit Who’s Who entry. Additionally, some professionals were keen to delay care-planning discussions until later in the pregnancy, despite this being against our clearly expressed wishes and having a potentially negative impact on Rumer’s care.

15 February 2018

Complaint about Rumer’s care, part 3

Preamble & Appendix 2

A bit of an administrative update, this one: see below for the short introductory part of the complaint, followed by Appendix 2, which is a list of all the outcomes we’re hoping for as a result of the complaint. The latter is compiled from shorter lists throughout the document, and in order for it to make sense, only the outcomes which relate to the parts of the complaint that have been published to date are shown. We will add to the list as further parts of the complaint are published.

12 December 2017

Complaint about Rumer’s care, part 2

Covering letter (Appendix 1)

First of all, apologies to anyone who’s been waiting for us to get on with publishing our complaint as promised in October! We had some website issues to deal withthese are on track now and further updates should follow more quickly.

Below is the covering letter we sent with our (very long!) complaint about Rumer’s care (also included in the complaint document itself as Appendix 1).

24 October 2017

Complaint about Rumer's care, part 1

One year ago today...

Today, 24th October 2017, marks a double anniversary. Not only is it Rumer's 25-month birthday, it is also one year today since we submitted a complaint to the hospitals that provided her care.

After Rumer died, we made requests under the Data Protection and Access to Medical Records acts for not only Rumer's hospital notes, but also all meeting minutes, emails and so on pertaining to her and/or us. It took us a long time to get them all and they came piecemeal and in no particular order. Even now, it seems unlikely that we have all the documents there were. For example, it has been claimed that one significant meeting was not minuted and that consultant meetings are routinely unminuted.

12 July 2017

The myth of the irrational parent

Will parents really do anything to save their child?


This article by Zoe Williams in the Guardian today is just another in a long line of articles about the case of Charlie Gard saying exactly the same thing.

The accepted message is:
  • The doctors are dispassionate and able to accept that the child is desperately ill and there is nothing to be done.
  • The parents are desperate to save their child at any cost, will do anything at all to save him and are behaving in an irrational way; however this is okay because any parent would do the same.

14 August 2016

Rumer's Story, part 20

Neonatal & Palliative Care meeting: II


Thursday 2nd July 2015
27 weeks pregnant


Keen to bring the discussion back to treatment options, Chris proceeded to describe our understanding of the pregnancy risks and how we wanted to mitigate them (eg. close monitoring, c-section). He wanted to show our thinking about how to manage the obstetric problems, since that was what we were most familiar with at this point, thinking that that would give Ida an idea of the general approach we wanted to take in order to set the tone for the discussion about postnatal management. He also wanted to illustrate that we were realistic about the high rates of stillbirth and neonatal death; that we were going into this with our eyes open.

1 August 2016

Rumer's Story, part 19

Neonatal & Palliative Care meeting: I


Thursday 2nd July 2015
27 weeks pregnant


So we got back to the now very busy Fetal Medicine Unit (FMU) waiting room around 12:20 and waited. And waited, and waited. At 1pm, half an hour after the appointment should have begun, we spotted the neonatal consultant, Ida Leigh, chatting to George Donnachie; he ushered her into his room in his usual charming manner. And we waited; we remarked to each other that had we known it would be this long, we'd have had some lunch – by this time we were very hungry after our early start.